Join the Registry
Make your voice heard. Support the type 1 diabetes community. Drive research that matters.
The Power of Lived Experience
The T1D Exchange Registry harnesses the power of lived experience. By sharing what life with type 1 diabetes (T1D) is really like, you help identify the challenges that matter most and shape research, tools, and resources designed to better support the community. The Registry also shares information about research studies conducted by academic and industry researchers. You choose whether to learn more or take part in these additional studies. The T1D Registry has helped connect thousands of people to research studies.
About the Registry
Understanding how the Registry works and the impact your participation can have.
What the Registry Is
The Registry is a long-term research study that follows people with T1D over time. Today, more than 23,000 individuals across the U.S. are part of the Registry — creating one of the most robust real-world views of T1D in the country.
How Participation Works
When you join, you'll complete a questionnaire about everyday experiences, technology use, and self-reported outcomes, like severe hypoglycemia. You'll complete a brief annual follow-up and can choose to take part in additional research opportunities throughout the year.
Registry Impact
Registry voices have contributed to expanded insurance coverage for glucose meter strips, updated ADA pediatric A1c guidelines, FDA expansion of CGM labels, and Medicare coverage of continuous glucose monitors.
Join the Registry
Your experiences can help improve research and care for people living with type 1 diabetes.